Tuesday, July 8, 2008

Well, it appears I have some catching up to do.

1. June 13 - We had an ED visit. Yes, Friday the 13th, in the Emergency Room. It didn't appear to be his normal vomiting/diarrhea episode, especially since those usually happen first thing in the morning. So, we all chalked this one up to a "normal" kid belly bug. We were home by 6:30am on Saturday morning.

2. June 30 - Frankie celebrated his 3rd anniversary of his transplant.

3. July 1 - Frankie started his Extended School Year at Alice Peck. It has taken (or rather, is taking) him a little while to warm up to the new teachers. Thankfully, he's in the same classroom, so he's familiar with those surroundings. I had already seen signs of behavioral regression with just a few days without school. So, we are all very happy that he is back in a school routine, if only for the month of July.

4. Please say your prayers for a little girl, Victoria, who has just underwent a transplant at Boston Children's. We met Victoria and her parents on 7W at Yale many months ago. She is a few days post-transplant and she and her family really need all of the prayers and support they can get. Please visit her at: http://victoria.meme.googlepages.com/home2

5. My dear friend, Brian, lost his father at the end of June. He was diagnosed not too long ago with cancer. Brian has been such a good friend, in gently reminding me to update Frankie's web site every 2 weeks! He has made me smile, laugh, and helped me keep positive. Please help me in praying for comfort and peace for him and his family.

6. My second cousin (I think that's how this goes) is celebrating his anniversary this week. HAPPY ANNIVERSARY, JOHN AND ANN! My mum told me you were celebrating, so I thought I'd pop you a little "Congrats" via the web site. John is my mom's cousin, so I think that makes him my second cousin. Or first cousin once removed... I don't know... it's crazy math.

7. I do have new pictures to put up. Actually, I have A LOT of pictures to post, but it takes me a while to size them and pick the right ones I want to use. So, that may take me a day or two. Keep checking back. I know I'm WAY behind on that part of my web site. I'll try to do better.

On that note, I think I've written all of the updates I can think of... If anything else pops into my head, I'll write more later. Until then, thank you so much for continuing to follow Frankie's progress!!

We head to Duke for Frankie's 3 year follow-up in August. We're hoping to extend it a little and make a vacation out of it. We could all use it!

Hugs!