Wednesday, May 7, 2008
On Monday morning, Frankie lost another friend. Beautiful Kacey Rose earned her angel wings on Monday morning just before 11am. She had been battling AML. My years blur, so I can't tell you exactly when we met Kacey, but I know it has been over a year. And, unfortunately, we didn't get a chance to meet her in school or on a playground or in a play group. We met her at Yale on 7W.
Families always are glad to meet another family, one to share joys, accomplishments and milestones in their children's lives. But, for families with children with diseases or disorders, we share in the sadness, too. The children become a part of our lives and we hope and we pray that a miracle will happen. We are constantly reminded of how precious life is and how we must all put aside the negative crap that distorts our normal daily lives in order to provide a happy, loving environment to our children every day. Kacey's mom and dad are absolutely no exception.
I cannot pretend to know what it is to lose a child. I cannot imagine the loss they are going through right now. No parent should have to pick out a grave site or headstone for their child. In all honesty, I dread that moment. I do know that my heart aches for their loss. I do know that I will continue to spoil Frankie with hugs and kisses for as long as he will let me.
So, the next time your child spills something, breaks something, climbs on something they shouldn't... instead of yelling, try quietly addressing the inappropriate behavior, then hug and kiss your child. I am a firm advocate of reassuring your child that you love him or her every day.
Please honor the life of Kacey Rose by visiting her site. Her wake is tomorrow, Thursday, May 9 and funeral Friday, May 10, both in Cheshire, CT. The details are on her web site, in the "forums" section.
We will miss you, Kacey Rose!
On a side note, Frankie has been doing very well at home and at school.
Monday, May 19, 2008
Wednesday, May 21st is my baby boy's FIFTH birthday! WOW! I can't believe Frankie is turning five.
I'd like to say I was one of those mom's who had everything planned months ago to throw him an awesome party, themed and all. However, since his health has been so unpredictible over the past year, we never really end up planning anything. We just kinda go with the flow.
So, as is our usual situation, we will be throwing Frankie's birthday party tomorrow night (one day early), which has been basically organized in a matter of two days. It's easy when you're ordering pizza and I've ordered a cake that I'll be picking up tomorrow. I am going to make cupcakes to bring into school, so I can say that I've accomplished at least that!
We're just having family over, which also makes the night easier. And, since our boy is pretty much spoiled year-round, his birthday will just seem like another day people hug and smooch on him... only tomorrow, it will have cake and candles.
For his actual birthday, Wednesday, we're just going to be low-key. Frank has to go to school that night, so it'll just be me, Frankie and his Mema and Poppy. I almost had to work that night, but luckily, I was able to get it off.
Well, not much more to write right now. Frankie's sporting a bit of a spring cold, but thankfully, that's it.
I hope all is well with those of you who still check in on us from time to time. Our thoughts and prayers continue to go out for those families whose children are ill, have passed or have just started their journey with a new diagnosis.
And, for my sweet baby boy... HAPPY FIFTH BIRTHDAY, MY LOVE. MOMMY AND DADDY LOVE YOU SOOOOO VERY MUCH! WE HOPE YOU HAVE A WONDERFUL DAY!